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Frustrated Rant

I apologize for this depressing post ahead of time. But I'm feeling it a lot right now and need to get it out. I don't like to talk about the negative part of living with diabetes very often. Truth of the matter is, I avoid discussing some areas of living with diabetes like the plague. Because some of the negatives of living with diabetes make me feel like I'm in a cage with no way out.

From the time I was a small child I understood that diabetes cost a lot of money. When I was first diagnosed, meters ran in the hundreds of dollars (no free meters here!). I remember when losing a meter was a HUGE deal. And I did lose a few.


And although I had a fairly normal, stable upbringing, I thought about running away once. When I was about 8 or 9, I think. And I remember my thought process about it. I knew what I needed to take; toys, clothes, food...and insulin. I even got smart enough to realize if I waited until my mom got my prescription refilled that I'd have the most amount of insulin to take with me.

Then it occurred to me that I couldn't stay gone forever (isn't the the point of running away?) because once the insulin ran out, I'd have no way or no money to get any more. Diabetes foiled my plans. It also made me realize, even more than I already did, that the answer to me living a semi-healthy life was to having health insurance.

I was quite a bit older before I realized that getting health insurance was harder than it seemed. I couldn't just buy a policy on myself. I couldn't work for a company that made me pay for my own. I think I was in middle school or high school when I finally realized that I'd have to work for a big company in order to go in under a "group policy" to get my health insurance.

As a college student this wasn't really an issue for me. I knew that I was going to be a teacher. And working for a school system offered great insurance. No problems, right? Yeah. Sure. Turns out that even though I loved children and the act of teaching children, teaching in the public school system wasn't really for me. There is too much going on that doesn't have anything to do with teaching (I still gladly teach my Sunday school class and adore children).

So I ended up working for state government. Still great health insurance, even though it isn't exactly my dream job. But the longer I'm with my job, the more I want to be doing something else. I am thankful for my job. I'm not miserable (most of the time). But it's not my life's passion.

The problem that arises is that most of the things I want to do require either A) more schooling, or B) being self-employed. Both of those end up with me leaving my job and losing my health insurance. I'd love it if I had a "significant other" that could carry insurance on me while I went back to school. But I don't. Also, almost anything that I'd want to do requires self-employment. And as we have all learned after diabetes entered our lives, getting insurance when you are a diabetic is IMPOSSIBLE or way, way more money than anyone can afford (unless they're rich, which I'm not).

Basically, I feel like I'm running into a corner or a wall over and over again. Frustrating, yes. Depressing, yes. I can live with the normal ups and downs of diabetes every day. I can deal with the fact that I'm probably going to have to deal with this disease for the rest of my life. I've been doing these things for most of my life already. But the fact that diabetes, in some ways, seems to be keeping me from what I want to do with my life frustrates me beyond belief.

I don't want diabetes to have that much control over me. But diabetes doesn't seem to be happy with dictating when I eat and sleep. And when I'm feeling well and when I'm not. And sometimes even what clothes I wear (dresses, girls??). Diabetes seems to even want to dictate what I do for a living.

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